DEBRA (Dystrophic Epidermolysis Bullosa Research Association) is a global network dedicated to supporting individuals with EB. Their website offers a directory of EB specialists and clinics worldwide. You can search for professionals by country or region to find the nearest expert care
National EB Centers and Clinics
Many countries have designated centers specializing in EB care. These centers often provide multidisciplinary teams, including dermatologists, geneticists, and wound care specialists. For example: United States: The EB Center at Stanford Health Care. United Kingdom: The EB Team at Great Ormond Street Hospital. Australia: The EB Clinic at the Royal Children's Hospital, Melbourne. Consulting your country's health department or DEBRA's national branch can provide specific information on these centers
University Hospitals and Research Institutions
Academic medical centers often have departments dedicated to rare genetic disorders like EB. These institutions may offer advanced treatments and participate in clinical trials. Examples include: Mayo Clinic (USA) University Hospital Heidelberg (Germany) Kyoto University Hospital (Japan) Contacting these hospitals directly or visiting their websites can provide information on EB specialists and services offered
Online Medical Directories
Several online platforms allow you to search for specialists by condition and location: Healthgrades: Offers patient reviews and detailed profiles of doctors in the USA. Zocdoc: Allows booking appointments with specialists in various fields. Doctolib: Popular in Europe for finding and scheduling with healthcare providers. Using these platforms, you can filter searches to find dermatologists or geneticists experienced in EB care near you. For personalized assistance, consider reaching out to your local DEBRA branch or national health service. They can provide tailored recommendations based on your location and specific needs